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Eternal Refuge
Because Everyone Needs Dreams.
Just A Mini Moan! 
28th-Sep-2014 08:45 pm
Wanting a hug - Cap'n John
Not a great weekend for me, sadly.

First the weekness and aching has been slowly increasing, so that in itself is poor.  I did have quite a lot I wanted to do for Mum & Dad in the garden, while the weather holds ... so wasn't looking forward to that!  However Tim & Claire popped in over lunch and stayed a few hours, so as well as being great to see them, it meant I had a bit of a rest.  That made it easier to cope with the day, even though I didn't get much of the things done that needed to be done.

Then, of course the main sadness is that James was in England and I wasn't going to be seeing him.  He was at a convention and I really can't cope with group things like that, even for James.  So I had sadly opted not to go.  As it turns out, with less work I couldn't have afforded it (although if it had been one of James' days I would have begged, borrowed or stolen!)  I am also glad that I didn't have to do the travelling .... so that was easier for my body.

As I hadn't aimed to go to see James, I had said I would play at Bude's orchestra concert .... however I had to pull out of playing as the playing, as well as the travelling, would have been far too much.

So, all in all, a tough time.
28th-Sep-2014 08:12 pm (UTC)
I'm so sorry that you're still feeling ill. I hope you get some answers soon. *hugs*
30th-Sep-2014 07:38 pm (UTC)
Thanks - it has certainly been a very long year!


Edited at 2014-09-30 07:38 pm (UTC)
28th-Sep-2014 08:27 pm (UTC)
I've forgotten - do you have a diagnosis for this lingering illness or are you just trying to muddle through? I certainly hope you can get a handle on it soon and be back to your usual energetic self. If you skipped seeing James, I know you must feel bad!
30th-Sep-2014 07:41 pm (UTC)
I saw a consultant a couple of weeks ago, and he was saying that I was unwell, but not into any specific pattern .... so they are still talking viral. After 10 months though it is hard that is still keeps getting slightly worse from time to time.

Yes, hard to not see James ... but there again, I though last year that I may not get the chance to see him again :(

Edited at 2014-09-30 07:42 pm (UTC)
30th-Sep-2014 09:55 pm (UTC)
Chronic Fatigue Syndrome? That can be very debilitating when it flares up. If you lived in this country, I'd suggest getting checked for Lyme disease, but I doubt our deer ticks have made it to the UK. :) I hope it either goes away, or you get a firm diagnosis and treatment.
7th-Oct-2014 09:28 am (UTC)
Yes, it is finally diagnosed .... and you are correct ... Chronic Fatigue Syndrome.

So, at least there is a diagnosis, even though there is no treatment for it ... other than sleep!
7th-Oct-2014 02:29 pm (UTC)
Hmmm That must be what I've had most of my life... :) B vitamins, IV fluids? I thought they had come up with a few therapies that could at least make it better, if not gone? Well, at least now you know and can learn to work around it.
28th-Sep-2014 09:02 pm (UTC)
30th-Sep-2014 07:38 pm (UTC)
Thanks Deb

*hugs* back

Edited at 2014-09-30 07:39 pm (UTC)
29th-Sep-2014 08:40 am (UTC)
Have they still no idea what is causing all this fatigue?

I'm glad you got some help with your mum and dad - I'm sure worrying about helping them is not helping you .... Do they know how poorly you are? Getting some outside help would help you all..
30th-Sep-2014 07:45 pm (UTC)
Sadly all they can come up with is that it is still viral ... 10 months and counting!

Mum won't accept help. Her GP tried organising something but she said that she was coping, and what she couldn't do, I could do!! She does know I'm ill,but she is not good at accepting illness as an excuse to not do things!

Edited at 2014-09-30 07:45 pm (UTC)
29th-Sep-2014 10:16 pm (UTC)
I hoped you'd feel better by now. So I'm sending yo *get well wishes* again.
Can't hurt.
30th-Sep-2014 07:42 pm (UTC)
Thanks Cordy - it is my friends that are helping me through.

Edited at 2014-09-30 07:43 pm (UTC)
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